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hi everyone! I got my first pump in March of 2009, and it was awesome! They replaced it in Dec 2016 due to battery life. They did not replace the catheter and I went through a year of on and off withdrawal due to the cath kinking. Now I have a new pump placed 12/18/17 and a new unkinkable catheter. The restrictions are so much greater than the first time.
A month of no bending, twisting, reaching or carrying more than 10 lbs. I know it’s because the catheter is less flexible and they want it to stay put while scar tissue forms to help it stay in place....
My problem is I have a weird pain up my spine to where the catheter is threaded (T10). My mid to upper back is achy and my muscles are twitching and it’s making me nauseous. I only feel ok when I lay flat. Anyone have experience with the new unkinkable catheter? I keep worrying about a granuloma or hematoma.
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