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Need help after 9 months+on bedrest, 2 months post op

Hi All,

In March I hurt my spine doing impact sports(one bad herniation, 1-2 not bad). After 7 months (10 surgeons with different opinions), I got a lumbar disectomy. One reason it took so long was due to my odd symptoms, my pain only really arised when vertical, I would wake up with no pain (thought it would come 10-30 minutes after getting up).

My symptoms (leg pain, back pain) are all still the same. I'm losing motivation due to the time/pain I've spent on my injury. I did PT every day prior to surgery, but was bedrest really 20+ hours day. After surgery, I'm finding it harder to do therapy due to a bit of increase leg pain, back pain (surgical site still swollen), and no relief.

9 months in bed 20 hours a day at age 25 isn't great. Further, my surgeon from a top orthopedic US hospital wants me to wait (as would most doctors) a few more months before considering other options. Being conservative is understandable, but I'm finding motivation and spirits dwindling daily.

While being active to an extend is key, motivation is low considerering I did everything every PTs/Pain Management/ and Doctor has told me to for the last 9 months, with no help. I have no pain medication other than NSAIDs which do nothing to me to say the least. I've tried to stay away from opiods, but I'm not sure where to go from here. Any suggestions mentally or physically? I currently do PT every other day, and try to walk 3-4 times a day (some days I can't even get out of bed). Symptoms have not gotten any better from surgery to present.

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Comments

  • nutcase007nnutcase007 United StatesPosts: 274

    I might sound like a jerk, but I highly suggest scheduling a second opinion while you are waiting. I speak from experience that after five months post-op from a cervical surgery, I was in worse pain than before surgery. I was thru physical therapy and all that post-op stuff. After a year, I finally got a second opinion. If was only after ten second opinions and almost four years post-op that additional problems were diagnosed. I hope for your sake, it doesn't take that long for you to get on the road to recovery. The moral of the story, you need to advocate for yourself. If possible, get a family member or close friend to also advocate for you. If you are getting feedback from your doctor(s) that does not make any sense, its time for another second opinion.

  • Thank you. Just got my xth MRI, so will hear feedback from that, express what I posted above and ask for what the next step will be, or what I plan to do (stem cell, regenokine, etc). If he is very against it now, I may speak with other surgeons but I've already faced issues in the past from seeing to many surgeons.

    The surgeon is skilled but not very empathetic or understanding, which isn't the best but skill above all else obviously.

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  • Your MD might want to consider imaging from a standing or sitting position while there’s weight on the spinal column.

  • Your MD might want to consider imaging from a standing or sitting position while there’s weight on the spinal column.
    Too bad these are so hard to find. I think the closest one is in Kentucky.
  • I can only say we have them here in North Florida. I’ll do some research on locations

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  • So I actually got my last MRI in an upright position. I'd say the only new thing (I havent heard from the physician yet) is that my spin convexes which was not found when lying down.

    Not sure if that causes the pain though, other than that similar to other MRIs in terms of final impressions. But pretty big convexity in area of my surgery.

  • Hi monthsonmonths

    Welcome to Spine-health

    It can be frustrating and does not motivate when you are in so much pain after surgery.

    I am surprised your pain is not being controlled with stronger pain relief to enable you to mobilise properly, as walking actually takes away a lot of pain. To spend too much time in bed after surgery, can cause stiffness, which in turn causes more pain.

    I hope you are able to find the route of the problem and get some help with good pain relief and nerve pain relief.

    I have added two links below to help new members with information and these also contain the forum rules. There is lots of material to research that will give you the power of knowledge.

    Welcome to Spine Health


    AJ


    AJGormit
    Spine-Health Moderator
    ---------------------------------------------------------------

    L5/S1 herniation Apr 2013
    nerve root injections Oct 2013
    L5/S1 discectomy Jan 2014
    L5/S1 nerve roo &, facet joint injections & edpidural Jan 2015
    L5/S1 revised discectomy, L4/L5 discectomy & Wallis Inswing Stabilisation L4/L5 May 1st 2015
    L4-S1 TLIF with decompression June 2017
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