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Horner syndrome and droopy eyelid from ACDF surgery

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2

Comments

  • Glad I found this place...Three weeks ago I had smart port implant surgery. When I woke up I had a droopy eye lid and slight face impact.
    I was checked with an MRI for a stroke and two doctors seem to have no idea and a third thinks Bells Palsy. I keep telling them this is related to that surgery and they think I am crazy, so finding other people who have had neck surgery (port implant requires and incision in the neck to place a catheter to the port)now at least I have a place to start.

    Thank you
  • fireman ron said:
    I was also wondering about Homers syndrome. I noticed the comments and was wondering how common it is. My Doc never mentioned a thing. Imagine that.
    my doctor never mentioned this complication either...matter of fact, he never mentioned ANY complications associated with this surgery, even after I specifically asked him what complications could arise. yeah, imagine that. now, he claims I dont have horner's, but only a segment of it...I was actually diagnosed at the ER by three different specialists, as positive for Horner's...I have all the symptoms associated with this syndrome, not just one.

    My advice....read up on what you're getting done and what the possible complications are. Dont let doctors tell you there is no relation, as I was told, or that it could be due to something else....do your research!!!
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  • NovemberH said:
    Glad I found this place...Three weeks ago I had smart port implant surgery. When I woke up I had a droopy eye lid and slight face impact.
    I was checked with an MRI for a stroke and two doctors seem to have no idea and a third thinks Bells Palsy. I keep telling them this is related to that surgery and they think I am crazy, so finding other people who have had neck surgery (port implant requires and incision in the neck to place a catheter to the port)now at least I have a place to start.

    Thank you

    I was just in the hospital er this past weekend, after having acdf surgery...complications...horners. I was probed and pricked at the hospital and kept telling them....it's not a tumor, nor a stroke, nor an annurism.....it was the surgery I had done YESTERDAY!!! Doctors don't like linking this complication to this surgery apparently and it obviously happens more often than they tell you. I was told there was a 1% complication rate, but was never told what the complications might entail, including the fact that I could have stopped breathing on the table because of the location of my injury.
  • I have Horners as a comlpication from ACDF C-7. It has been just about 2 years since the surgery. It is permanent for me.

    Julie
  • I too have horners from a 4 level fusion. My NS also said it was not from the surgery but I know it was. I noticed and my mom noticed it right after surgery. Droopy eye and pupils react differently.
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  • jsm00160 said:
    NovemberH said:
    Glad I found this place...Three weeks ago I had smart port implant surgery. When I woke up I had a droopy eye lid and slight face impact.
    I was checked with an MRI for a stroke and two doctors seem to have no idea and a third thinks Bells Palsy. I keep telling them this is related to that surgery and they think I am crazy, so finding other people who have had neck surgery (port implant requires and incision in the neck to place a catheter to the port)now at least I have a place to start.

    Thank you

    I was just in the hospital er this past weekend, after having acdf surgery...complications...horners. I was probed and pricked at the hospital and kept telling them....it's not a tumor, nor a stroke, nor an annurism.....it was the surgery I had done YESTERDAY!!! Doctors don't like linking this complication to this surgery apparently and it obviously happens more often than they tell you. I was told there was a 1% complication rate, but was never told what the complications might entail, including the fact that I could have stopped breathing on the table because of the location of my injury.
    I too have developed Horners Syndrome and RLN (neuroplaxia of recurrent Laryngeal Nerve Palsy) as well. None of my docs or surgeons want to admit that any of these (new) symptoms are caused from the surgery but I find it ridiculous to say the least. I am so frustrated with the fact that nobody wants to fess up to the idea that they made any mistakes due to the possibility of legal ramification. Regardless of what the (experts) are saying we all know that they caused these complications. I am on the hunt for any answers or treatments or tests that can be done to remedy these horrible outcomes. I personally am having a difficult time with this all including depression and loss. I am a public speaker. my voice is my livelihood and I feel they have taken this from me. I am hurt and dismayed at the casualness of all medical prefessionals involved. at the very least, we all deserve an apology and some sort of support (both emotional and physically) to cope with these horrible side effects. (I for one was never told of the complication...I was simply handed a pamphlet with general warnings...no percentages or accurate warnings) It is so very validating to hear that there are others out there suffering like I am. I seem to be "overemotional and overreacting" according to my docs and surgeon and this is not acceptable at all...I have every right to feel lied to and emotional over what has happened. I am glad to know I am not alone but saddened that so many others are going through similar heartbreaking situations. Stay strong and know we can all make a difference and hopefully save (or at least warn) others who are about to have this surgery. thanks for all the encouraging words and advise!
    Jamie
  • fireman ron said:
    Having surgery in 1 day now on c5 - c7. Just wondering what to expect for the recovery time. I am a firefighter and I need to get back to work ASAP.
    please be sure to ask whether your surgeon will be monitoring the nerves surrounding your vocal cords and the optic nerves that are stretched or compromised during procedure. I was not so lucky and have developed Hormers syndrome (left eye droopiness and left pupil does not dilate equally, as well as vocal cord damage....no voice after 35 days of surgery. now it looks like it could be permanent. just ask as many questions of possible compincations and the percentages of these (unforeseen side effects). Best of [email protected]!
    Jamie
  • vm77002vvm77002 Posts: 1
    edited 02/19/2015 - 4:52 AM
    Unlike many here I have never had any kind of back or neck surgery so I can' t attribute my Horner's to it. I thought I would post though because many here are saying that your doctors refuse to admit there is a correlation between the surgeries you have had. But after dealing with this since 2010 I’m starting to think that they really don’t know (in addition though in your cases they wouldn’t want to admit it).
    In 2011 through the numerous testing I had to go through when they were trying to determine the cause of my Horner’s - I took 3 MRIs (the neurologist was looking for a tumor or clot) but only found a bulging disk sitting on a nerve. So my thought was that maybe that is what is causing the nerve in my eye to make it droop. I have been told by my neurologist, neuro ophthalmologist, optometrist and chiropractor that no it can’t be - because the eye nerves are controlled by the brain, not the spinal nerves. Well I just went to see a chiropractor last Monday (who told me the same thing) yet lo and behold after he worked on my neck my eye was better and the next morning it felt better – not 100% better but I’ve had this now since 2010 and it has gotten worse – more droopy and feeling weighed down and tired. After that first chiropractic adjustment it felt better! When I first asked my neurologist about a chiropractor he gave me this blank look and basically told me not to bother. But I’m going to continue to try it. I also just saw my neuro ophthalmologist again yesterday for a yearly checkup and she spent 5 minutes telling me no change - see you next year – nothing can be done. I forgot to ask her if some sort of eye surgery might help. I’m going to investigate that also.
  • vm77002, I also have droopy eyelids. Both of mine are affected. Unlike a lot of people, mine started about a month before I had an ACDF for myelopathy. I know it's not uncommon for people to develop this after surgery on their spine. I have a cousin who had it happen and the Dr. told her it does happen. The surgery did not alleviate my
    problem and I am going to have to consult a neurologist to rule out Myasthenia Gravis (which I don't think I have) as I don't have any of the other symptoms that go with that disease. My NS also told me that droopy eyelids are caused by a problem with the brain but if you do some research you will see that damage to vertabrae T1-2 can cause Horners. The superior cervical gangliion which does connect with the eye goes all thru the cervical spine to the thoracic spine. So I would think that any damage to that area could cause it. I think that some Drs. just don't want to admit that the surgery could cause it.
  • I had surgery 6 weeks ago of acdf at c5 c6 and clear horner syndrome on the left eye and face of sweath stoping. My doctor said it should recover. He gave me 15 days steroids also. I waiting for the recovery by it self. Let's see what happens next.
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