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Has anyone ever had this spinal cord condition?
And has itrogressed and got worse.
it is starting to get worse for me.
please post or reply to me
I need some direction to go forwArd

God. Bless


  • Hi Mike!
    I haven't heard of this condition (but looked it up), and just wanted to offer you, 1) a welcome to the forums, and 2) hopes that you will not only find relief, but also camaraderie here with other members with whom you share commonalities.
    When I did the internet search based on your post, I did see some forums specifically dedicated to myelomalacia. Strength in numbers, right? Perhaps joining multiple forums will help you to find out more about your condition as well as feel the comfort of knowing that you're not alone. Maybe you could take a moment to educate us about what myelomalacia is when you're feeling up to it? I know anyone with a computer could find articles online about it, but to hear about this condition from someone who experiences it is educative in a way in which no medical journal can really compare.
    Take care, and welcome to the forums!
    Kimmy72, Spine-health Moderator
    Firm believer in PMA!
  • MikethepikeMMikethepike MIchiganPosts: 362
    This is a posting from a while back, since this posting. I have got worse,...
    muscle spasms and tightness, nerve pain worse, muscle atrophy, can't sit very long and now
    standing very long is hard. Hard breathing when sitting. The myelomalacia
    is in my. C 2 area. If anyone has this please respond. Dr. Don't like to tell you.
    they just say don't worry about it.
    Hey. Take. Care. God. Bless
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  • I'm sorry, Mike. I don't have this condition, but I do know what it's like to go into a physical decline.

    Bless you, too!
    Kimmy72, Spine-health Moderator
    Firm believer in PMA!
  • I had this and am 15 weeks post op for c3 to c7 fusion.

    Three different surgeons said I needed surgery and that the condition would only get worse.

    The big problem is that with spinal cord injury they say that once there is damage it does not recover.

    I hated the idea of surgery but hated the alternatives even more.
  • MikethepikeMMikethepike MIchiganPosts: 362
    So. Arnold you have myelomalacia? Where is it,
    mine is in the C. 2 area. I would love to find a specialist on it.
    Id like to find the reason it progresses.
    So if anyone knows send me a personal message
    take care. God. Bless

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  • MikethepikeMMikethepike MIchiganPosts: 362

    Hi everyone, I figured I'd bring this up again, Just wondering if anyone new on here has it,

    My muscle tightness is getting worse especially in the back, chest, and diaphragm area.

    I have been taking Clonopin and Zanaflex, doesn't really seem to do much. Please respond

    Just looking for new ideas. Physical therapy doesn't seem to help much.

    Take care and God bless everyone that has pain.

  • MikethepikeMMikethepike MIchiganPosts: 362

    Just wondering anyone else out there with myelomalacia?

  • MikethepikeMMikethepike MIchiganPosts: 362

    I really feel that people have it but the doctors won't bring it up. I found out by reading the MRI report.

    The first time I question the doctor he said don't worry about it, Think of it as a small scar.

    I have it in the cervical area, at C. 2. Take care and God bless

  • I do -- at C5-6-7. I'm getting multiple opinions from spine doctors because the first one thinks I need surgery ASAP. Meanwhile, the damage appears to neurologists as a multiple sclerosis plaque/lesion.

  • MikethepikeMMikethepike MIchiganPosts: 362

    I am not a doctor but my opinion Would be to have a neurosurgeon recommendation and have an operation to stop compression on the spinal cord Can I ask what symptoms do you have such as, spasticity, hard breathing, tingling numbness in hands and feet. Keep a close eye on it. Take care and God bless

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