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  • I'm waiting on the surgery--I definitely do not want surgery! A second opinion with an orthopedic spine surgeon was that I do not need surgery and that the spot on my MRI does not look like myelomalacia, but he seemed like an uninterested putz. Anyway, I will be seeking a 3rd and 4th opinion with neurosurgeons (instead of orthopedists) because what appears as myelomalacia may be from multiple sclerosis. Sigh.

  • Symptoms are tingling in my hands and arms, pain in my neck/back and MAJOR stiffness in my neck, shoulders and upper back. I had other weird symptoms for 10 days a few months ago (feelings of heat on my skin on one side of my body; right legs was numb/tingling/weak, very sensitive to touch). The Neuro team in the hospital at the time thought it was MS and did a spinal tap, which was positive for MS. However, I've been reading that the spinal tap could be positive due to damage on spinal cord (myelomalacia). I have an appt with a top MS specialist in February, and I'm hoping he can shed some light.

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  • MikethepikeMMikethepike MIchiganPosts: 361

    Hi Jodes, One question do you have compression something pushing on the spinal cord in that area. I am not a doctor

    But if there is compression, something pushing on the spinal cord, I myself would have the operation.

    Take care God bless and merry Christmas and happy new year

  • Mike, I can tell you what it is but honestly the best course of action would be to find a good neurosurgeon since it appears your pain and symptoms are getting worse. And at C-2, definitely make it a neurosurgeon!

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